Main Organiser

Julius Centre University of Malaya

Co-organiser

Department of Social and Preventive Medicine, Faculty of Medicine, University of Malay

Supported by

University of Malaya

THE IMPACT OF CHRONIC ILLNESS AMONG CHILDREN ON THE FAMILY

Author

Suhaila A Shukor, Azizah Othman, Azriani Ab Rahman

Institution

Universiti Sains Malaysia

Abstract

Objectives: The advance of medical technology has resulted in increased rates of survival among children with chronic illness. As chronic illness affects not only the children, but also the families, there is a need to assess the impact of chronic illness in children on the family. The study aims to determine the impact of chronic illnesses among children on the family and to examine factors related to it.

Methods: A cross sectional study was conducted among 103 caregivers in Paediatric Clinic Hospital Unversiti Sains Malaysia Kelantan Malaysia (HUSM) accompanying their children with chronic illness using the Pediatric Quality of Life Inventory™ (PedsQL™) family impact module. Simple Linear Regression and Multiple Linear Regression were used to determine the relationship between identified factors and family impact.

Results: The Mean Score of Total Impact Score, Parent Health Related Quality of Life (HRQOL), and Family Functioning were 76.52 (SD = 16.21), 76.65 (SD = 16.97) and 80.74 (SD =19.15) respectively. Number of children was found to be the significantly associated with family impact, with b of 1.47, (95% CI = 0.11, 2.83).

Conclusion : The parent’s quality of life and family functioning among caregivers of children with chronic illness in this study was considerably satisfactory. Interestingly, higher number of children was found to be associated to better family impact in families of children with chronic illness.